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January 2012
Welcome to the Fleurieu Cancer Network’s website. As you can see we are now on facebook so pop in and say “hi” leave any stories or information you would like to share, like us of course, or answer our 3 questions about information, care and support…..see below
We have some new information posted here now
- New Cancer Friendship support Group starting Feb 20912
- FCN Cancer Conversation Project Survey-continues
- Community Carols
- Update for 2011
The Fleurieu Cancer Network’s objective: to establish a permanent wellness drop in centre for Onkaparinga
This has always been our objective but we have been busy to date getting ourselves creditably known to the community and decision-makers while forming strong links and developing our networks.
It is now apparent that we have come of age and move forward to Incorporation.
I would like to thank all those who have helped bring us to this point but we still need more help and support to bring our objective to fruition.
Thanks to:
* Gary Coulter, Panther Club at South Adelaide Football Club
* Amanda Rishworth. MP Kingston
* Alison Angus, Christie Downs Community House
* Bryan Hearn, McLaren Districts Prostate Cancer Support Group
* John Shields, Onkaparinga Prostate Support Group
* Reference group for the Cancer Conversation project, John Gray, Janelle Levesque, Monica Byrnes, Amanda Robertson, Helen Gray
* Brenda Wilson, Cancer Council SA
* Vanessa Swinney and Gwyn Jolly, Healthy Cities Onkaparinga
* Heather Anderson, Look Good Feel Better
If you would like to become involved or have an interest in FCN… please join us.
Meetings – 3rd Thursday of the month
1-3pm
Christie Downs Community House Crn Morton & Flaxmill Road Christie Downs
Ph 8186 0048
If you would like regular e newsletter please go to membership – FREE to join.
Sincerely
Artie Ferguson – Chair
CANCER FRIENDSHIP SUPPORT GROUP – ALL WELCOME
Over the last year FCN has received many phone calls from people with cancer asking where they
could go for support and friendship. Unfortunately if your cancer is not breast or prostate the options are very limited in the south. So in
response to these calls, FCN has decide to establish a generic friendship group open to anyone travelling the cancer journey either sufferer, family member or friend.
It will be a friendship group offering social support, information & education although it will not provide medical advice either clinical, alternative, new age or complimentary.
We are lucky enough to have a person willing to facilitate the group and Alison from Christie Downs Community House has provided the room for the group to use for this year.
So come along meet people travelling a similar journey, have a cuppa and chat and help establish this group and plan for the year ahead. All welcome.
When: Thursday 16th February
Time 1-3pm
Where Christie Downs Community House
Crn Morton & Flaxmill Roads
(next to Christie Downs railway station)
Phone: 8186 0048
The patient experience..Tell us what you think!
The answers to these questions maybe sent to us without any identification or posted on our facebook page
1. INFORMATION: We are interested in what information is needed during cancer care.
- What information or resources would you consider important after diagnosis. In what format?
2. CARE: We are interested in how easy it was to access health care services during cancer care.
- How well organized were the health services you received after diagnosis?
3. SUPPORT: We are interested in the kind of support needed during & after cancer care.
- How did life change after diagnosis?
A Conversation with Cancer Project - Improving the Cancer Journey
When cancer patients tell their stories, will decision-makers listen?
This project has been developed by the Fleurieu Cancer Network to encourage people travelling the Cancer journey to link together and have a voice, feel more in control of their situation and feel less isolated by sharing their stories. There is nothing like the power of people’s stories to generate attention and action.
AIM:To document real issues by people travelling the cancer journey through narrative or anecdote methods to provide information to policymakers so evidence based policy and service delivery can be established.
Objectives of the project
• To generate attention and action
• To provide an avenue for stories to be told
• To encourage conversation and debate
HOW
We live in an era were we are repeatedly told that policy and service delivery must be evidence based and there is nothing like the power of people’s stories to generate attention and action.
Evidence based policy is being encouraged at all levels and in all areas. It is fundamental for sustainable health reform & an effective health care system.
Cancer Conversation Project will assist decision-makers hear the issues from the real experts—the people travelling the cancer journey. Decision-makers will see, hear and feel the issues of people travelling the journey.
Multi media formats will be developed for public viewing, comment and debate.
They might include:
• Video
• Booklet
• Pamphlet
• Visual Art
YOUR INVOLVEMENT:
1. Tell your story
2. Share the message
3. Join the Reference Group
A conversation with cancer will encourage and create conversations by people with cancer, their families, friends, carers and the general community with decision-makers who develop policy and service delivery based on evidence.
This project has two interrelated components
1. To provide an opportunity for people to tell their stories that will be documented in some form of multi-media format.
2. To link to decision-makers at policy level with a report providing recommendations for improved services.
CRAFTS FOR CANCER
This initiative came from The Improving the Cancer Journey: A Conversation with Cancer Project.
The Craft for Cancer project is a way that local crafters can help those folks travelling the cancer journey and their families and carers to help make life a little easier.
Craft groups can donate any craft item such as beanies, scarfs, turbans, lap rugs, teddy bears, cards, materials, patterns, ideas, anything really. There will always be a need and a way to use it.
The Look Good…Feel Better project have shown interest in receiving items and up to date a variety of head waer has been donated to the program.
Come on board…
• Want to give back to the community?
• Donate craft items, patterns or materials
• Become involved in the planning and running of the Craft for Cancer Project
• Help promote the project through your contacts and through your networks
• Help distribute donated craft items
• Provide contacts of interested groups
• Provide contacts of organisations